NIH Collecting Medical Records for Autism Research

The National Institutes of Health is collecting the private medical records of many Americans from federal and commercial databases for use in Health and Human Services Secretary Robert F. Kennedy Jr.’s autism research.

NIH Director Dr. Jay Bhattacharya said Monday that the new data sets will provide researchers with “comprehensive” patient data and “broad coverage” of the U.S. population for the first time, CBS News reported.

“The idea of the platform is that the existing data resources are often fragmented and difficult to obtain,” Bhattacharya reportedly told NIH advisers during a presentation. “The NIH itself will often pay multiple times for the same data resource. Even data resources that are within the federal government are difficult to obtain.”

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